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has anyone had a nerve problem in the arm? - MORE PICTURES 2-12

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Old 05-09-2008, 05:51 PM
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paceo
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Exclamation has anyone had a nerve problem in the arm? - MORE PICTURES 2-12

basically i have been suffering from immense pain for a mumber of years now, been in and out of hospital, i have had an mri scan and they thought it was myosotis, a muscle disease , i went to a proper specialist yesterday who said i have very very mild signs of it but it would not cause the pains. also my physio thought it was a bicep tendon problem but the mri scan showed its fine.

i have been referred to so many departments and had a scan in the wrong place which is why its taking so long.

now the pain i get is in the bicep by the armpit area (red outline, but worst pain is by the armpit), i had some needles pricked into me yesterday and im very numb around the area where i get the pain, the pain also travels down my forearm as well. the pain hurts a lot when i breath in as im expanding my body, i also have trouble sleeping as it wakes me up and the more physical activity i do the worse it gets (running machine etc...), i am also extremely weak with gripping things with my hand.

the NHS is finding it hard diagnose this probem but the doctor yesterday highly belived it is a nerve problem, i have some emg nerve tests soon so hopefully that will find something. other than that they said i have to live with it, well fuck the doctor but im not giving up, im in pain everyday!

seriously thinking of going private as money talks!

Last edited by paceo; 02-12-2008 at 03:12 PM.
Old 05-09-2008, 06:11 PM
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Chris Honeywell
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Have you tried acupunture??

got to be worth a shot m8, never had it myself but have heard good things
Old 05-09-2008, 06:14 PM
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The DIVA
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You got any coordination probs ?

Focal Dystonia maybe ?
Old 05-09-2008, 06:16 PM
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paceo
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Originally Posted by The Diva
You got any coordination probs ?

Focal Dystonia maybe ?
no i havent mate, its like something pinching a nerve, my muscle is ok, my tendons are ok, slight and i mean slight myositis in the bicep but the specialist assured me this was not the cause of pain, i was very numb around the area of pain with a needle, surely its a nerve fault, its the only tests i have not had done!
Old 05-09-2008, 06:20 PM
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900ss
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I'm sure you have but you might want to read up on the brachial plexus and its various nerves.
That might give you a clearer idea of where the prob may be

http://en.wikipedia.org/wiki/Brachial_plexus_injury

Can be interesting, esp if you suffered an injury to it
You dont haveto be a baby either lol
Old 05-09-2008, 06:26 PM
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paceo
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Originally Posted by 900ss
I'm sure you have but you might want to read up on the brachial plexus and its various nerves.
That might give you a clearer idea of where the prob may be

http://en.wikipedia.org/wiki/Brachial_plexus_injury

Can be interesting, esp if you suffered an injury to it
You dont haveto be a baby either lol
did have a read, i am very weak in the hand which it mentions, but nothing about the agony im in, the rhematologist yesterday made me squeeze her hand and my left hand crushed her hand but my right did not!

just to let you know, my mum has carpel tunnel nerve problems and had them cut but my main pain is in the bicep but it does travel down the forearm.

now the nerve in the bicep travelling down that way is i think off the top of my head, medium nerve and ulner nerve
Old 05-09-2008, 06:30 PM
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Maria.
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Have you ever been told about Tenosynovitis


http://www.patient.co.uk/showdoc/23069141/

someone i know has it in their arm, and it took years for it to be diagnosed, they find the only thing that really helps is heat!

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Old 05-09-2008, 06:35 PM
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Originally Posted by maria
Have you ever been told about Tenosynovitis


http://www.patient.co.uk/showdoc/23069141/

someone i know has it in their arm, and it took years for it to be diagnosed, they find the only thing that really helps is heat!
thats what we initially thought babe, had physio no cure then had a mri scan and tendon is fine!

the thing yesterday we found is its completely numb on the bicep region where the red line is, ive just had my parent scraping me with a needle while i look away and i could not feel a thing.

surely that must be a nerve due to numbness
Old 05-09-2008, 06:39 PM
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Yup I had bother with the Ulnar & Median nerves following a bit of a knock, It caused my left hand to be closed shut - not nice, anyway fortunatly I had very good surgeons and is now healed 100%.

Good luck, often getting to see the right specialist is half the battle.
Old 05-09-2008, 06:40 PM
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Maria.
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paceo - ah i see!

does ANYTHING help relieve it at all?
Old 05-09-2008, 06:42 PM
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Originally Posted by maria
paceo - ah i see!

does ANYTHING help relieve it at all?
lots of heat spray!
Old 05-09-2008, 06:43 PM
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Maria.
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hmmmmmm

well whatever it is, i wish you all the luck in the world tryinbg to find out!
Old 05-09-2008, 06:43 PM
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Originally Posted by Andy_R
Yup I had bother with the Ulnar & Median nerves following a bit of a knock, It caused my left hand to be closed shut - not nice, anyway fortunatly I had very good surgeons and is now healed 100%.

Good luck, often getting to see the right specialist is half the battle.
i get silly stuff like that, my hand locks and i get cramp and can also shut! you got msn to have a chat? paceo1@hotmail.co.uk

or your surgeon name so i can call them, i dont mind travelling

Last edited by paceo; 05-09-2008 at 06:53 PM.
Old 05-09-2008, 07:03 PM
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Here's a link which may help!

http://www.privatehealth.co.uk/priva...id43=28310&p=4

I dont tend to use msn but if you've any questions by all means pm me and i'll do my best to answer them.

Last edited by Andy_R; 05-09-2008 at 07:05 PM.
Old 05-09-2008, 07:06 PM
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Originally Posted by Andy_R
orphapedic is what i have seen and neurology, same department and same stuff!

how much did it cost you?

with the locking, was your hand perminantly shut? or did it lock at random times like when eating food? sounds silly but whem i use a fork my hand can lock into a cramp and i have to open up my hand.

did you get any major pain in the bicep, especially when you breath in becuase you expand your body when you take in air.
Old 05-09-2008, 07:08 PM
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tabetha
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Could be a ULNA nerve problem, there are masses of nerves that cross around this point though.
I have a trapped ulna nerve in my right arm, owing to crushing it in 1983(rta), so I know what pain is, it is bad but MUCH worse using pec dec, as pads rest on area of nerve crossover(inside of arm by pec).
I have been advised that I could have a nerve replant done, but this would take 2 full years to heal properly and may not be any better and could be worse.
I hope this is not your problem, I had all the nerve conduction studies due to pins /needles both arms both legs, plus sciatica 24 hours a day, but mine is caused by thorocolumbar facia whichis in constant contraction, so now take opiates 800mg a day.
tabetha
Old 05-09-2008, 07:11 PM
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Originally Posted by tabetha
Could be a ULNA nerve problem, there are masses of nerves that cross around this point though.
I have a trapped ulna nerve in my right arm, owing to crushing it in 1983(rta), so I know what pain is, it is bad but MUCH worse using pec dec, as pads rest on area of nerve crossover(inside of arm by pec).
I have been advised that I could have a nerve replant done, but this would take 2 full years to heal properly and may not be any better and could be worse.
I hope this is not your problem, I had all the nerve conduction studies due to pins /needles both arms both legs, plus sciatica 24 hours a day, but mine is caused by thorocolumbar facia whichis in constant contraction, so now take opiates 800mg a day.
tabetha
its awful pain mate, escpecially when driving i have to pull over and get out of the car and breathing in air!

did you have the emg where they ram needles into your arm? i had this to test my muscle but not to test my nerves, so i have 1 more set of tests left but the waiting time with the nhs puts me off!
Old 05-09-2008, 07:30 PM
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My hand was permanantly shut due to nerve damage, as in I lost the use of it for around 4 weeks, then gradualy it eased day by day.
The cause was in part* due to impact to the humerus(bone thats in the upper arm) and which is between the Bi & Tricept.

*I believe that the colar bone which I also burst runs very close to Ulnar nerve so this may have also contributed to or have been the cause of the nerve dammage.

Pain: because the nerve dammage was only part of the dammage and I was on Morphine anyway, it was more an inconvinience and a concern rather than painfull.

Cost: I was most fortunate in that the hopsital where he works was the hospital I was flown to. He is know as the best in his field and is held in high regard. Good old NHS payed for his time

Hope that helps.
Old 05-09-2008, 07:31 PM
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Originally Posted by Andy_R
My hand was permanantly shut due to nerve damage, as in I lost the use of it for around 4 weeks, then gradualy it eased day by day.
The cause was in part* due to impact to the humerus(bone thats in the upper arm) and which is between the Bi & Tricept.

*I believe that the colar bone which I also burst runs very close to Ulnar nerve so this may have also contributed to or have been the cause of the nerve dammage.

Pain: because the nerve dammage was only part of the dammage and I was on Morphine anyway, it was more an inconvinience and a concern rather than painfull.

Cost: I was most fortunate in that the hopsital where he works was the hospital I was flown to. He is know as the best in his field and is held in high regard. Good old NHS payed for his time

Hope that helps.
was the operation performed on your bicep area? im going to call him monday
Old 05-09-2008, 07:36 PM
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bicept was cut from top to bottom opened right up.
Old 05-09-2008, 08:04 PM
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any neck pain? trauma to the neck?
anybody taken your reflexes?
Old 07-09-2008, 09:46 AM
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Originally Posted by m3cosworth
any neck pain? trauma to the neck?
anybody taken your reflexes?
no neck pain and i did have my reflexes tested on wednesday

strange as my arm is fine today, other days im in moderate to complete agony, something is trapped but the docs cant figure it out with me which is frustrating!

surely there has to be someone more local than scotland, going to ring him monday anyway.
Old 07-09-2008, 03:42 PM
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anyone?
Old 04-11-2008, 06:00 PM
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Originally Posted by Andy_R
My hand was permanantly shut due to nerve damage, as in I lost the use of it for around 4 weeks, then gradualy it eased day by day.
The cause was in part* due to impact to the humerus(bone thats in the upper arm) and which is between the Bi & Tricept.

*I believe that the colar bone which I also burst runs very close to Ulnar nerve so this may have also contributed to or have been the cause of the nerve dammage.

Pain: because the nerve damage was only part of the dammage and I was on Morphine anyway, it was more an inconvinience and a concern rather than painfull.

Cost: I was most fortunate in that the hopsital where he works was the hospital I was flown to. He is know as the best in his field and is held in high regard. Good old NHS payed for his time

Hope that helps.

found the problem andy! im sure you remember speaking to me!

went to see a specialist in nerves today and they know 100% whats wrong, its a ulner nerve problem -

i have severe muscle wastage in my right hand which is the common thing to spot, i never thought anything of it, but she spotted it straight away! other doctors did not look at my hand!

syptoms i told her about were numb arm, extreme pain, hand shut / locks up now and then, lack of strengh in handgrip, impared joint mobility in fingers!

the muscle wasteage is irreversable as the nerve is detatched from the muscle, so i will never be able to gain that muscle back as it has died and i will be perminantly weak in the hand but i just want the pain to go!

i also described syptons of carpel tunnel problems as well but i have to go for some nerve tests first and then take it after that! 6 years of pain and it does my head in!


Old 04-11-2008, 06:23 PM
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Paceo Funnnily enough you crossed my mind yesterday whilst I was at hospital about my own arm(back next week for even more tests and X-rays).
I'm guessing that knowing what you now know, will be reassuring in a way, the not knowing really does suck doesnt it!
Dont write off not regaining your strength though stranger things have happened!
Hopefully they can sort out decent pain management for you in the mean time until such times as they can have your arm/hand functioning beter and with less issues than you currently have! Best wishes!
Old 04-11-2008, 06:29 PM
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Originally Posted by Andy_R
Paceo Funnnily enough you crossed my mind yesterday whilst I was at hospital about my own arm(back next week for even more tests and X-rays).
I'm guessing that knowing what you now know, will be reassuring in a way, the not knowing really does suck doesnt it!
Dont write off not regaining your strength though stranger things have happened!
Hopefully they can sort out decent pain management for you in the mean time until such times as they can have your arm/hand functioning beter and with less issues than you currently have! Best wishes!
yes i am being prescribed some steroids to calm nerve pains as paracetemol never usually does anything to me

quality she knew by muscle wasteage that its the ulner nerve that does that and every symptom i have relates to the ulner nerve problems, also when the arm is bent like driving causes me massive problems, she said that is all symptoms of this problem when the arm is bent! i can only drive 10 minutes or so before getting out of the car and dieing in pain!
Old 04-11-2008, 07:19 PM
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in pain now
Old 04-11-2008, 08:06 PM
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Cant be nice

At least you know what the problem is now, which must be a sigh of relief!
Old 04-11-2008, 08:19 PM
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Maria.
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Wow, i guess it must be a relief o know the cause now!
Old 05-11-2008, 03:16 PM
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Originally Posted by maria
Wow, i guess it must be a relief o know the cause now!
months off work = months of boredom tho
Old 05-11-2008, 03:36 PM
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Pity I didn't spot this thread when it was first posted. I could have said Ulner nerve, but only as a guess as the wife has problems with hers. (don't ask me anymore about it tho as I do the usual husband thing by showing lots of interest, wellllll, there's always something wrong)
She also had carpel tunnel and the muppets wanted to operate on both wrists 3 days before Xmas when she was first going to get it done.
Old 05-11-2008, 03:38 PM
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Originally Posted by Fast Guy
Pity I didn't spot this thread when it was first posted. I could have said Ulner nerve, but only as a guess as the wife has problems with hers. (don't ask me anymore about it tho as I do the usual husband thing by showing lots of interest, wellllll, there's always something wrong)
She also had carpel tunnel and the muppets wanted to operate on both wrists 3 days before Xmas when she was first going to get it done.
are her hands full of wasted muscle? where it has all died due to loss of nerve feed?

has she had the operation yet on the arm?
Old 05-11-2008, 03:45 PM
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I don't think she has wasted muscle, she was just getting pain. I don't think it was a full time pain, more coming and going.

She's not had the operation yet, I'm guessing it may not happen now as it's been a couple of years. She used to work at a private hospital, so got the diagnosis/test stuff on her works health insurance. (silly moo left that job)
Old 24-11-2008, 06:52 PM
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Originally Posted by Andy_R
Paceo Funnnily enough you crossed my mind yesterday whilst I was at hospital about my own arm(back next week for even more tests and X-rays).
I'm guessing that knowing what you now know, will be reassuring in a way, the not knowing really does suck doesnt it!
Dont write off not regaining your strength though stranger things have happened!
Hopefully they can sort out decent pain management for you in the mean time until such times as they can have your arm/hand functioning beter and with less issues than you currently have! Best wishes!
im on very stong steroid now to controll my pain and they work good but its not a long term cure, surgery is the only cure.

andy can i ask did you have nerve tests with the electric pads and huge needle they put in your arm? got to have them done again reason is the hospital thought it was a tendon rupture and its the same emg tests for muscles and nerves and its painfull
Old 02-12-2008, 03:12 PM
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Old 02-12-2008, 03:26 PM
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Originally Posted by paceo
im on very stong steroid now to controll my pain and they work good but its not a long term cure, surgery is the only cure.

andy can i ask did you have nerve tests with the electric pads and huge needle they put in your arm? got to have them done again reason is the hospital thought it was a tendon rupture and its the same emg tests for muscles and nerves and its painfull

pm'd with more detail
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