my boy got the same form of meningitis as you when he was five weeks old, took 13 weeks and 3 hospitals to find out what was up with him.
it was Great ormond street hospital in london that found out what was up and cos it took so long he got hydrocephilis(spelling) as a result of the meningitis and now has a shunt after a big brain op.

he is doing well now but will have to have the same op when he is about ten to have a longer shunt put in.